We drove to Seattle Tuesday for Jacob's appointment that was scheduled for Wednesday at 6:40am. It was an uneventful drive, but of course with any drive when you have kids, it took at least 2 to 3 hours longer than it is supposed to. We got to Seattle and luckily had our very great friends Liz and Gary waiting for us with food, beds, and (most importantly) drink ready to go.
We did not get to bed as early as we should have for our early appointment and wouldn't you know it, Jacob decided we needed to get up at 3:30 in order to be at our appointment on time.
We got to the hospital and the glued all of the EEG leads to the top of Jacobs head so they could monitor him all morning and throughout the PET scan. It was a lot of hurry up.. and wait, which made for an exhausting day. He is a little trooper though, and did not complain nearly as much as I wanted to. After they finished the scan and he woke up
form the anesthesia, we had just about enough time to go and meet Liz, Gary and Josh (who was being entertained by them while we were at the hospital -thank goodness) for lunch. We needed that break especially since Jacob, Rick my Mom, and myself had not eaten much at all that day and all realized we were very hungry for Ivars fish and chips! We also got to 
go and see the troll under the bridge in Fremont before heading back to the Hospital to meet with Dr. Novotny, the director of the Epilepsy Program. He had not had much time to review the PET scan, but did show us some of the test and told us that Pediatric Neurologists, neurosurgical residents, fellows, attending and researchers would be getting together in the next couple of weeks to go over all of his testing (MRI, PET, EEG, etc.) and come up with the best ways to approach treatment for Jacob. He will be going back at least one more time for some neuropsycological testing to determine development and to see how much of a candidate he is for surgery to remove the troublesome area in his brain. So for now it is more waiting to find out what they think and when they want him back (possibly in July?).Meanwhile Josh was out having a great time seeing the sight of Seattle with Liz and Gary. We hear he even got to ride in the front seat next to the monorail driver and to honk the horn of the Train. He also went to see the Space Needle and to Pike Place Market to watch them throw around some big fish. He had a great time and we are so grateful to Liz and Gary for taking care of him so well. He would have hated being in the hospital with us and all of that waiting (I know Jacob and I would have preferred to be on the tour of Seattle).
So there you have it for now. Hope all is well with all of our friends and family! Love to all!
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