We flew out Saturday 9-11 (of all the days to pick to leave on a plane), and both boys did very well on the flight. Jacob slept most of the flight and Josh looked out the window and asked a lot of questions. Our only little issue was when we were towards the end of the flight and the flight crew was preparing everything for landing and Jacob decided to gag on a small piece of pretzel I gave him and then proceed to throw up some of what he had eaten. The flight attendant was very good about helping me get things cleaned up very quickly and even hanging tea bags around us to prevent the smell from further affecting others on the plane. Of course he was able to do all of this before we landed on the ground. We arrived in Seattle around 3:30 pm Pacific time and then had to wait about an hour for our rental car details to get worked out, but we finally made it to West Seattle to Pat and Tom's house where we were greeted with wonderful food and great company. Liz, Gary, Pat and Tom are the greatest hosts! Sunday we hung out, relaxed, and went to the Sunday street market to look around and get some local berries, bread and such, and Josh spent lots of time playing with his Seattle friend Milo (who lives next door).
Monday we went to Seattle Children's Hospital, where they checked Jacob in and put on all of the leads for his overnight EEG. We then got to just hang out and wait for the seizures for the rest of the day. The nurses there were great at taking care of him and coming in and describing all of Jacobs seizure for the video so the doctors could better evaluate them later. My only complaint was that we did not get much sleep because it was noisy and they came in at midnight and woke him up just to take his blood pressure.
Tuesday he had the first MRI followed by a functional MRI and then they released him when he was awake from the anesthesia and able to eat and drink a bit. He did not like the hair do he was given and was very happy to leave!
Wednesday we came back and had a couple of appointments with the Neurosurgeon and the doctor we had seen before and he had another eye exam (his eyes are great). The doctors were very good at answering all of our questions and believe Jacob may be a good candidate for Surgery. All of the seizure activity is on the left side of his brain, and they think he may have already switched many of his functions to the right side that normally would be controlled on the left, but that they will revue all of the EEG and MRI data and give us more information in a couple of weeks. If they did surgery though, they thought it should be done in about 3 months or so. All in all, they gave us a lot of information to think about and will let us know what their recommendations are and what kind of options we have soon.
Wednesday we came back and had a couple of appointments with the Neurosurgeon and the doctor we had seen before and he had another eye exam (his eyes are great). The doctors were very good at answering all of our questions and believe Jacob may be a good candidate for Surgery. All of the seizure activity is on the left side of his brain, and they think he may have already switched many of his functions to the right side that normally would be controlled on the left, but that they will revue all of the EEG and MRI data and give us more information in a couple of weeks. If they did surgery though, they thought it should be done in about 3 months or so. All in all, they gave us a lot of information to think about and will let us know what their recommendations are and what kind of options we have soon.
Hi Meghan: Glenn keeps me posted on Jacob's progress but I just wanted to let you know that we think about you guys a lot and hope to be able to visit soon! That picture of Jacob wrapped up in the bandages made me a little teary. He looks like such a brave little guy. I love the barfing story, too. They have such perfect timing, don't they?
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