Monday, October 18, 2010

Life goes on

Well here it is already the middle of October, the leaves are changing colors, and We still don't really know what is in store for us with Jacob. We did hear from the Doctors in Seattle (sort of), but they did not tell us much more than they told us when we were there. They still think that Jacob's best option is surgery (a left hemispherectomy to be a bit more exact), but they would like to see more results from genetics testing (which we went in for a few months ago but the genetics lab would not do the tests due to their idea it was useless- we are letting the doctors duke it out with them). They feel if Jacob does not have the surgery the bad part of his brain (left side) will eventually destroy the good part (right side). They feel he will get to a point where his development will plateau or he will start to regress. Drugs have so far not made a huge impact, so our options there are becoming limited, so surgery is looking to be the most effective method to get control of his seizures and keep his development on track. It is not however without risks.
Good news (I think) is that we are coming off of another medication to see how Jacob will do. I am glad we are taking another one off his schedule, but I also hope it does not wreak havoc on him with many more seizures. So far, so good. We are still hoping to get more information about the conference that they did about Jacob, but who knows when that will be, so we just take things day by day.
(I call this one OMG)

We did have our family pictures taken last week by a photographer friend of mine Kim Mitchell, who also took our photos last year. I told her I would be happy to work a trade, so I am hoping I can return the favor soon and do her family photos. She got some great photos (as usual) and I am greatly appreciative. We will be sending out our Christmas cards with one or some of the images when it is time.

This weekend we spent doing chores and trying to get lost at the corn maze here in Meridian. Josh and Jacob had a great time trying to find our way around and Josh sliding and bouncing on all of the things they have there to do. We even tried to lose Rick and Jacob once, but they found us.

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